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The parents of Charlie Gard are anxiously waiting to find out whether doctors will grant their final wish to take their terminally ill baby home to die.
Chris Gard and Connie Yates ended their legal fight to take Charlie to the United States for experimental treatment on Monday after tests showed “time had run out” and the trip no longer offered a chance of success.
Speaking outside court, Charlie’s parents said he “unfortunately won’t make his first birthday” on August 4.
But it was not clear on Monday whether doctors at Great Ormond Street Hospital (GOSH), where Charlie is being treated, would allow the couple to take Charlie home.
He is hooked up to an artificial ventilator in the paediatric intensive care unit at the London Hospital, though the couple want to take him home for a bath and to put him to bed in his cot.
The parents now face critical talks with hospital bosses over whether he will be allowed to leave.
On Monday, Mr Gard and Ms Yates’ lawyers said they want to spend the “maximum amount of time they have left with Charlie”.
Bosses at GOSH have not yet said when Charlie’s life support equipment will be turned off.
But when European Court judges refused to intervene in the case in June, a hospital spokeswoman had said there would be “careful planning and discussion” before life-support treatment ended.
A team of medics would need to travel with Charlie and a mobile ventilator taken to the parents’ home, with the couple having reportedly offered to pay for this themselves.
Ms Gard read a statement during a hearing in the Family Division of the High Court.
“We are now going to spend our last precious moments with our son Charlie, who unfortunately won’t make his first birthday in just under two weeks’ time,” she said.
“Mummy and Daddy love you so much Charlie, we always have and we always will and we are so sorry that we couldn’t save you.
“Sweet dreams baby. Sleep tight our beautiful little boy.”
The parents have said they have been discussing end-of-life palliative care options since last November, and had always wanted Charlie to die at home if all else failed.
The Standard has contacted GOSH for comment.
London News & Search